Saturday, January 9, 2016

Chemo: The End

So I finished chemo on New Year's Eve. At the time I didn't know I had finished. I thought I had one left. But one of the side effects of the drug I was on is neuropathy. Last Sunday it was a struggle to get myself dressed, let alone do my girls' hair because my fingers were so numb.

My doctor said it was too risky for me to have my last treatment. She said I could loose feeling in my fingers permanently. Right now they are just numb at the tips and I have a good chance of getting full feeling back. She decided it was time to cut my losses and skip the last treatment.

The nurses gathered together and wished me well. They gave me a bottle of sparkling cider and told me to go celebrate. It was bittersweet to tell them goodbye. They've been a big part of my life.


We celebrated at Starbucks with the cookie and mint tea that Chris usually delivers to me during my treatment. 


I had very mixed feelings ending chemo. On the one hand, I was glad to be done. On the other hand, I hated not finishing. Being done with chemo feels weird. I have been fighting for 7 months. The fight is over now. I am afraid to end the fight. I've never been one to sit tight and hope that nothing bad happens. That's precisely what I have to do now. There is a lot of fear associated with ending treatment.

There is also a lot of relief. Today was the first Saturday in months I was able to participate in life. I am still exhausted, but I'm not crashed like I normally am. It will be a long time before I am back to normal, whatever that is, but at least I'm on the up side of things now.

When I started Taxol, which comprised my last 12 treatments (or I guess it was only 11 with the skipped one), I started a countdown on the wall of my cubicle. I took a selfie every week as I took down a number... at least after the first one. Anyway, here's my countdown. I got a little sicker every week. Now I get to do that process in reverse.













It's hard to look at those pictures. And not just because I suck at taking selfies. I don't want to remember how sick I was, and still am. But I need to remember because I need to appreciate health when it returns. 

I've been getting a lot of questions about what comes next. I can't have hormonal therapies (tamoxofin or herceptin) because my cancer was triple negative. I won't have scans unless my doctor feels the need to investigate something. I will get blood tests every few months to monitor tumor markers and liver and kidney health. I also will have a surgery in a couple months to finalize my reconstruction. 

I am told that my immune system will be back in a couple of weeks. I am told that my anemia will be gone in a couple of months. I am told that my hair will be long enough in 6 months that I won't even look like a cancer patient anymore. I am told the fear gets less as time goes on, but it never goes away. 

My oncologist says my job is to life my life now. It won't be easy, but I am going to try. 

Christmas 2015

Last Christmas Jane had the flu. Her fever got so high she was delirious. We kept saying that next Christmas would be better. Well, it rolled around and here I was... at the end of chemo. I'm not going to speculate about next Christmas. But all in all this Christmas wasn't bad.

I had treatment on Christmas eve, so I crashed on Christmas day, but there we managed to have a decent Christmas after all. 

We had Christmas eve pajamas


and Daddy reading the Christmas story from the bible


and going to see lights


Just looking at this house makes me tired, thinking of all the work that went into it. 


The loot had been prepared well in advance, so we just had to schlep it up from the basement.


And then the wonder of Christmas morning happened.



I even managed to make our traditional cinnamon rolls for breakfast. 


The kids got Kindle Fires. I have been holding out for a very long time on tablets for the kids. Chris convinced me that the Fires could be locked down sufficiently to be safe for the kids. We also locked them down so that they are primarily used for reading. You'll thank us someday, kids. When your classmate's brains are rotted from too many games and movies on their tablets. You're welcome.